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Professional Technical IVT

Omenn Syndrome

Pronunciation: OH-men SIN-drohm

A rare, severe combined immunodeficiency variant characterised by erythroderma, hepatosplenomegaly, eosinophilia, and elevated IgE caused by hypomorphic mutations in RAG1 or RAG2 genes that permit oligoclonal T-cell expansion.

Full Definition

Omenn syndrome is a leaky form of severe combined immunodeficiency in which partially functional RAG1 or RAG2 mutations allow the maturation of a restricted repertoire of autoreactive T cells. These oligoclonal T cells infiltrate skin, gut, and liver, producing cytokines that drive the hallmark features of generalised erythroderma, protracted diarrhoea, failure to thrive, hypereosinophilia, and markedly elevated serum IgE despite absent B cells. The condition can be mistaken for graft-versus-host disease or Netherton syndrome on initial presentation, making accurate editorial rendering of diagnostic criteria particularly important. Haematopoietic stem cell transplantation is curative but must be undertaken urgently. 'Omenn' is a proper noun and must always be capitalised; the possessive form ('Omenn's syndrome') is now discouraged in favour of the eponymous non-possessive form.

Usage

Usage note: Use non-possessive form: 'Omenn syndrome', not 'Omenn's syndrome'. Always capitalise as an eponym. Distinguish from graft-versus-host disease, which shares dermatologic features.

In Context

  • "Omenn syndrome was confirmed following identification of compound heterozygous RAG1 mutations and the characteristic triad of erythroderma, eosinophilia, and elevated IgE." — Paediatric immunology case report
  • "The manuscript initially used 'Omenn's syndrome'; the editor amended this to the non-possessive form in accordance with current convention." — Journal style guide annotation

Also known as

leaky SCID Omenn's syndrome (deprecated)

Don't confuse with

SCID graft-versus-host disease Netherton syndrome

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