CARRA registry
Also written as: CARRA — Childhood Arthritis and Rheumatology Research Alliance
A North American research database collecting standardized data on pediatric rheumatic diseases for clinical studies.
Full Definition
The Childhood Arthritis and Rheumatology Research Alliance (CARRA) Registry is a comprehensive, multicenter database that collects standardized clinical data from pediatric rheumatology patients across North America. Established to facilitate research in rare pediatric rheumatic diseases, the registry captures longitudinal data on diagnosis, treatment, and outcomes for conditions including juvenile idiopathic arthritis, systemic lupus erythematosus, juvenile dermatomyositis, and other inflammatory conditions. The registry has enabled numerous clinical studies and serves as a foundation for developing evidence-based treatment protocols in pediatric rheumatology.
Usage
Usage note: Use when referencing research enrollment or evidence-based protocols in pediatric rheumatology.
In Context
- "The patient was enrolled in the CARRA registry to contribute data for juvenile dermatomyositis research." — Research enrollment
- "Treatment consensus protocols developed through the CARRA registry have standardized care for pediatric lupus." — Clinical guideline reference